I am mainly wrting to share my shocking story- My daughter was born with a condition called microcephaly and her head at 4 yrs. old is about the size of a newborn. When she was about to be born I had NEVER heard of such a thing but was about to hear a lot more. It is considered rare and can be very subtle or drastic. I considered myself a pretty intelligent and educated person albeit I was in my early twenties. I had already given birth to one typical child with no complications and done all the classes and doctor appointments, read the usual new mommy books only to shocked and forified that this is something that can happen due to a rare genetic disorder or possible a virus neither of which my daughter's doctors can agree on to this day. I'd love for people to become aware and educated about this condition and also what impact it has for better and worse on everyone involved in the life of one of these precious children. Sierra's Mom

quote:

Originally posted by Mitsy:
I also watched the story about Taylor, the dwarf-sized little girl. While people might stare, they might not poke so much fun at the poor child if her parents would put braces on her teeth for heaven's sake! That is what makes her look more pathetic than being small.

I am watching the show now. I just want to say that I personally have been through ups and downs in my life. I have had set backs that I thought were big but after watching Taylor and how she continues to thread through life despite any set backs she is amazing! She is an Angel she inspires me. If she wants braces to fix her teeth I sure hope she can get them. I would be willing to help if i can some way. I personally feel that watching her has upgraded my outlooks on life! And secondly fashion designers need to take a moment to design some nice fashions for small people!

I watched Vicki's story last night on Discovery Channel (8/10/08), and the first thought I had was that it wasn't a very satisfying ending. The massage center seemed highly 'unmedical', and they certainly didn't appear to be real MDs! So I searched and found this forum, and became very disheartened to hear about Discovery's channel abuse of this women--not paying her for her time for the show, getting her hopes up for no real apparent reason, continuing to play this hoax, and not following through with sending her to Sweden to see an actual MD!! Absolutely horrifying! I for one would like a follow-up--did they ever 'resolve this issue' with Selma and Vicki???

Please respond,
Julie

Dear Julie, There were no provisions for follow-up treatment of any kind by the Discovery Channel or by the therapy clinic that treated her. Her leg is just as huge as it wss before the 6 weeks of treatment. They finally paid, but, claimed that they were not responsible for any further follow-up care.Unfortunately, no one is sending her to Sweden or anywhere else.Only time will tell if there is some help for my daughter Vicki.Anyone can type in,Vickiborken and get to her website.Thanks,Julie

One would think that TLC and Discovery Channel of all networks would want to to appear credible to the public. Not returning phone calls and not fulfilling obligations to the people who open their lives to their viewers is deplorable. TLC and Discovery Channel use these people to create revenue. The least they can do is to make sure they leave their subjects better off than when they found them. Perhaps speaking to my friends, neighbors, and fellow teaching staff at my local elementary, middle, and high schools can create enough of a email storm for TLC to sink just a little money into the people that create their shows and yes, their network. We are the fan base for these channels. What if we simply boycotted? Would phone calls get returned then? or would we just receive the same cynical detachment that led to Ms. Borken's mistreatment?

Dear Teacher Mom, Thanks for email posted about the deplorable detachment these people have for the ones that they mistreated like my daughter Vicki.People like yourself should be applauded for speaking out.No one wants to face responsibility.

AFTER WATCHING THIS PROGRAM. I TOO AM DISTURBED THAT DISCOVERY CHANNEL HAS NOT SENT HER TO SWEDEN. HOWEVER, I CAN'T HELP BUT FEEL SORRY FOR VICKY'S LITTLE GIRL. THE PHOTO OF HER HELPING HER MOM WITH HER FOOT IS SO SAD. NO CHILD SHOULD HAVE TO HELP TAKE CARE OF HER MOMS FOOT. MY DAUGHTER WATCHED THE PROGRAM WITH ME AND COULDN'T BELIEVE A MOTHER WOULD MAKE HER DAUGHTER HELP CHANGE HER BANDAGES EVERYDAY.
THIS IS A REAL SAD STORY FOR THE CHILD AS WELL.

This message has been edited. Last edited by: luvmykids,

Hi, I am Vicki's Mom. The Documentary is very inaccurate. Breezy does not help her Mother bandage her leg every day. Vicki bandages her leg herself.Breezy is very attached to her Mom and might help by handing her the bandages. Her leg takes lots of bandaging and although it is tedious,Vicki does not make Breezy help. Please explain this to your daughter. The picture was just for the documentary and a lot of the documentary has things that are false. Promises were made o Vicki and never were honored. Not long after the documentary was made,the pressure stocking given to Vicki broke when she tried to put it on. Consequently, her leg blew up from the insufficient drainage of the Lymph glands and her leg is just as huge as before the insufficient treatment was administrated. The Discovery Channel,BBC and the treatment center say that they are not responsible for her condition worsening after treatment. No one is sending her anywhere for furthur case and they keep showing the Documentary .Six weeks of treatment without any follow-up care was useless.The people making the documentary did not keep their promises.Vicki takes Breezy to school and goes home to bandage her leg as it must be wrapped at all times.I feel sad that your daughter was upset so once again,please tell her it is not true. Thanks for writing in and commenting.I am doing all corresponding for Vicki as she does not have a computer set up at this time.Vicki is the best Mom and is extremely close to Breezy. Breezy is quite aware of Vicki's condition and prays that her Mom will get help one day. Vicki's Mom

THANK YOU, BUT YOU MIGHT WANT TO TAKE THE PHOTO OFF VICKY'S WEBSITE WITH HER LITTLE GIRL TOUCHING HER FOOT. IT'S A VERY DISTURBING. I WISH VICKY THE BEST. AND I HOPE DISCOVERY CHANNEL COMES THROUGH WITH THEIR PROMISES. THIS MAKES ME NOT WANT TO WATCH DISCOVERY CHANNEL IF THEY'RE GOING TO FABRIC THEIR PROGRAMS.

Dear luvmykids,Thanks so much for understanding. I also love my 4 grown children,my grandchildren and my greatgrandchildren . Even having lived with Vicki's condition so long,I cry a lot when I think of her and the pain she has.It is comforting to know how many people wish her well. I have answered many emails that came in to Vicki's email and it is gratifying to know that people care in this crazy time for all of us.I did not create the website and have no idea of how to take it off,but, I will look into it.As for the Discovery Channel,it is all about making money as is so much in this world.It is so nice to write to a REAL PERSON like you. Best Regards,Selma

Hi,
My first post, please excuse if I just dive right in. I’m sorry I can’t comment on any of the other programs in this series as I have only seen the one on which I am about to comment.
The girl with x-ray eyes was a very good program, which I wasn’t entirely sure I would like prior to viewing. It gave airtime to the young woman from Russia, who can ‘supposedly’ diagnose medical conditions by looking at patients, she journeyed to New York to be tested by CSICOP (http://www.csicop.org/) the committee for sceptical inquiry.
After seeing the program I can only imagine that they are sceptically inquiring for their own amusement and not for any scientific quest for a universal ‘truth’. The language of their own scientists (psychologists mostly not hard science with math and numbers and repeatable results) betrayed their predisposition to bigotry and bias. When talking over the possible outcomes of the experiment it was plain to hear that the expected results were fraud type ‘A’ or fraud type ‘B’ only as an after thought was it remotely possible that something was going on which they didn’t cover in collage. Isn’t science supposed to be open minded. If you expect the outcome to be such and such then that is what you’ll be looking hardest to find evidence to support.
A better test would have been to let her shadow emergency room surgeons with her interpreter. The difference in ‘under fire’ statistics would mean more than “Well how big a charlatan do you really think she is Lenny?”.
I don’t care if it isn’t psychic activity (the very thing the CSICOP group seemed most scared of) if she can diagnose better with little to no training by using cold reading techniques and a little bit of self belief why should the world care. It’s entirely possible there’s something mundane happening which just hasn’t been quantified yet by scientific study. Maybe there’s a degree of super perspicacity on par with savant architects at work, which allows the correlation of tiny visible clues. The CSICOP experiments did not try to ascertain this. They just wanted to poopoo psychic activity so that they could sleep at night feeling safe in their smug understanding of the world.
Sorry for the rant,
Pete

Hello to all!
I watched "My shocking story-The worlds smallest kids" and it left me completely speechless
I live in a country that has been through a lot in the past decade, and difficult life stories are sth we are really quite used to...but this..this was sth else.I watched it almost breathless, admiring SO much the strenght,way of thinking, and the good will of Taylor, her mom and all of her friends.I dont know if any of them will ever have the opportunity to read this, but i wish them all the best and if, at any time, they wish to talk to someone or need support, i am here!Also, if u guys at the editorial team have some e mail i could write them to, i would appreciate it VERY MUCH!
Thank you,
Sanja

A few months ago I watched part of an episode of My Shocking Story entitled - the Boy with Divine Powers. It was about a boy, Ram Bahadur Bomjom, who meditated for months without food or water and then disappeared. I have been trying to find this on television since and have had no luck. It is even no longer listed as an episode on the Discovery Channel website, although on wikipedia it is listed as the last episode of series 2.

Does anyone know why it is not being shown or if it ever will be again? Thank you.

quote:

Originally posted by Sanja:
Hello to all!
I watched "My shocking story-The worlds smallest kids" and it left me completely speechless
I live in a country that has been through a lot in the past decade, and difficult life stories are sth we are really quite used to...but this..this was sth else.I watched it almost breathless, admiring SO much the strenght,way of thinking, and the good will of Taylor, her mom and all of her friends.I dont know if any of them will ever have the opportunity to read this, but i wish them all the best and if, at any time, they wish to talk to someone or need support, i am here!Also, if u guys at the editorial team have some e mail i could write them to, i would appreciate it VERY MUCH!
Thank you,
Sanja

Hey Sanja, I relate to you on that episode. I watch it and my heart was touched by Taylor. I searched and searched and finally found an e-mail address for her Mom, I e-mailed her with the offer to help raise up money for Taylor to have dental work done, if Taylor wanted it. but the e-mail was returned back invalid e-mail address I tried again and nothing.
Maybe they already have Dental work lined up for Taylor but I bet if she had her teeth and overbite corrected she would have more self confidence! I assume. I sure do wish I could get in contact with them.

Hello everyone.

I just watched 'My Shocking Story: World's Smallest Mom' and I have to bring to the producers attention that in the documentary, the narrator stated "Because she (Kyrsten) was born premature, she has a cleft palate." This is an inaccurate statement. Cleft's are not caused by, or related in any way to prematurity at all. Clefts are caused when muscles and tissues do not fully join in the head when the fetus is in the 7th-10th week of development in utero.

Otherwise,

Keep your head up, Christianne. You are a beautiful, wonderful person and a fabulous Mom. Don't let the bastards get you down.

Hi, all. Glenn Borken here. I understand that the insulting documentary on my sister, Vicki, is still being shown. I have not seen the revised version, but I was told that a derogatory false comment was added at the end. I have not had a chance to post in a while. I have been very busy since our mother passed away on September 28. I am thus, now handling comments for Vicki. Anyone wishing to send a comment, or if you are interested in helping Vicki go to Sweden for the operation that the Discovery channel promised her, but denied, please email me at glenn101953@yahoo.com. Anyone in the South Florida area wishing to attend my mother's funeral may also contact me, of course, for directions.

Dear Glen,

We take all comments seriously. The production company that made the documentary with Vicki wrote to you to address your concerns. We will ensure they contact you again.

The Editorial Team

Sorry but all these kind of shows are just sick...its just like going to a freakshow!
or a car crash


lame and voyaueristic..

Hi ,sorry for my english, i'm italian and I saw yesterday the story of vicky on the discovery science.
I'm so interessed about it so I decided to see if there's something more to learn about it on the web and I discovered this forum.
I tried to read all the things You have wrote, something I've understand and somethings no...
In the italian program, it's specified taht she does not agree with the operation in sweden, and that she preferes to made bandages and elasto-compression .
the end of the story is full of hope, then I decided to find something more on internet to know now she really is and if the cures she had , give her a new sort of life .
It's really sad to read that she is now like the beginning of the messages, I know waht is lymphedema, I discovered to have Lymphedema when I was 21, and I really understand vicky and I really know how does it feels to have it.
I know how it's difficult to made every day this kind of cures, but it's the only way to make it better. i think her legs is devasteted and naturally she needs many other cares than just bendages.
I hope to have something good news about her.
i hope thet somewhere Vicky could find the right way to live.
please leet me know something.
Thanks to all and sorry for my bad english, because I would like to say more but it's so difficult to explain what I feel in a language that is not mine!!!
Sara